A long time

I knew it had been a while since I posted, but I didn't realize it had been nearly one month. I have had several friends and family request that I post more or again so here it is.
Today was an interesting day. Dr. Mangus from Indiana was here in Utah to give a speech to the transplant department at the University of Utah. He called last night to ask if he could come by our home today to check on Scott. I was very impressed that he would make the effort to drive to Alpine to follow up with Scott. It was an informal visit obviously, but he checked the incision and said it looked like it was healing well. (We are almost there, hopefully it will be completely healed in the next couple of weeks) He did ask Scott about his weight loss/gain. Scott lost about 40 pounds from the day before surgery in July. In the last week or two, Scott said he had gained back about 5 pounds. Not great, but at least it is a start and he isn't still losing weight. Scott has not been on any antibiotics for two weeks now. We were very excited to have him finally off the antibiotics. We thought his appetite would increase and he would feel like eating again. Sadly that hasn't been the case. Instead, he has been very nauseated making it even more difficult to eat. We discussed this with Dr. Mangus and he felt it is possibly the pain medication that was changed by the Oncologists office. He is going to follow up with Dr. MacPhearson. She is the doctor who is following Scott at Dr. Whisenant's office. Dr. Mangus is also going to call in a prescription to help with the nausea. Additionally he is going to contact Dr. Harker, the radiologist, to discuss the drain for the abscess which he feels could be removed now.
Dr. Mangus discussed the possiblity of Scott returning to Indiana for a procedure (not surgical) to again attempt to connect the liver internally so he could eventually have the two biliary drains removed. The procedure has never been done, but the radiologists there in Indiana think it might be possible. I am not sure when or if we will return to try this. I know that Scott would have to be much much improved before he would even think about returning to Indiana. He has informed all of us that he will NEVER again undergo a major surgery. I understand why he feels this way, especially after the long, difficult road he has been on.
I love him so very much and am grateful for every day we have together and every small improvement we see.
For now as always, we are so grateful for your thoughts and prayers.
Love, Susan and Scott
* I will 'try' to post more frequently, thanks for your patience